Comments on: Right to HOPE

By: A Nagaratna

A Nagaratna — Fri, 03 Jan 2020 09:08:28 +0000

Kudos to you sir for the timely article updating the current scenerio regarding rare diseases. It is aptly titled HOPE as the community is in despair about the future of their children.Thank you

By: Swapna Roopesh

Swapna Roopesh — Thu, 02 Jan 2020 05:41:30 +0000

Congratulations Prassana Sir on your remarkable milestones!!!
This blog article unfolds your pursuit to make the society care for rare diseases. All the smiles that you have brought in people’s lives is a great inspiration for many. It’s a huge accomplishment and you are indeed a rare disease champion. In your journey for social awareness and establishing rare disease policies, I wish you great luck and success.

By: Nilesh Kulkarni

Nilesh Kulkarni — Thu, 02 Jan 2020 04:48:51 +0000

All the work process is good and clear it should be transparent ever.
Never run behind any Awards, F funds.
Just go on working with bottoms of heart
I really wish you this

By: Sanjay Nitave

Sanjay Nitave — Thu, 02 Jan 2020 00:51:05 +0000

If human beings will get more value and respect and love
……………. than the Stones, idols named ‘ Gods’
in our country,
Then and only then… the change will occur !

By: Gitika Khanna

Gitika Khanna — Wed, 01 Jan 2020 17:56:41 +0000

🏵️🏵️ My New Year Wish 🏵️🏵️

My Soul is free
and body is caged
With a heart full of love
And mind enraged

Yes, am filled with anger
Yes, am saddened to core
Helplessly I see my muscles dying
Am longing for a cure

I wish to touch the stars
I can compete with the best
I wish to play with my friends
But I’m forced to take rest

My father piggybacks me
My poor muscles can’t take my load
I wish to carry forward his legacy
He worries what my future holds

My mother is growing old
She needs my care
Silently she bathes me everyday
With tears she can’t even share

However hard I try
I cannot lift a spoon
I dream of feeding my family
And winning over MD demon

This demon is very cruel
Mercilessly snatches my toys
Instead gives me braces and calipers
Even afflicts little boys

My scientists are working hard
To defeat my muscular dystrophy
To give me a beautiful life
And make this world disease-free

(Penned down with hope by Gitika Khanna)

By: prasanna

prasanna — Wed, 01 Jan 2020 17:32:42 +0000

In reply to Ramgopal Vallath. Thanks Mr Ram, This is the efforts of many Patient support group, Genetic Doctors, Researchers,Scientists, Industry and patients voice. I have only summarized it.

By: Ramgopal Vallath

Ramgopal Vallath — Wed, 01 Jan 2020 16:31:45 +0000

Dear Prasanna, hats off to you and those with you who have made this much change happen. Hope is there where courage resides. And you all have that in plenty. My heartfelt congratulations to you and wishes for even more success and more hope for the patients and their loved ones.

By: Akshatha Rao

Akshatha Rao — Wed, 01 Jan 2020 15:45:03 +0000

Very useful information which most of us are not aware. Thank you and all the best with all the good work Sir !

By: Prakash V Dharwad

Prakash V Dharwad — Wed, 01 Jan 2020 15:19:18 +0000

Thanks for the details Mr.Prasanna, helps.

By: Rajesh K

Rajesh K — Wed, 01 Jan 2020 15:02:44 +0000

A very thoughtful presentation covering all and useful and get clarity for someone who readsit completely and for the parents of children who are affected gives them a HOPE that there’s a possibility that there is a support group. I’m very proud of you Prasanna