The post Received a gratitude for the patient support organization from the AEGIS of MOHEW Govt of India first appeared on Prasanna Shirol, Rare Disease Advocate.

The post Photos of FICCI Meeting New Delhi Aug 2025 first appeared on Prasanna Shirol, Rare Disease Advocate.

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The post @ APARDO Meeting Manila first appeared on Prasanna Shirol, Rare Disease Advocate.

The post Public Webinar On Ethics,Compassion,Dignity In End Of Life Care & Death. first appeared on Prasanna Shirol, Rare Disease Advocate.

The post MOHFW and WHO conducted the 2 days National Symposium On Rare Diseases in Udaipur first appeared on Prasanna Shirol, Rare Disease Advocate.

The post Arranged a Conference on Hereditary Angioedema (HAE) in Delhi first appeared on Prasanna Shirol, Rare Disease Advocate.

The post Meeting with Researcher and CF Patients in USA to explore opportunities to Support patients in India first appeared on Prasanna Shirol, Rare Disease Advocate.

Visited our RDCCC at IGICH visit and appreciated the facility by Dr Susan Holder Consultant Clinical Geneticist  London Craniofacial Unit NHS Consultant Clinical Geneticist

The post Visited our RDCCC at IGICH visit and appreciated the facility. first appeared on Prasanna Shirol, Rare Disease Advocate.

Visited Vishranti

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Visited – Daugher of Ranjini – Basaveshwaranagar – Rare Disease Family

The post Aug 2019 – Other Activities first appeared on Prasanna Shirol, Rare Disease Advocate.