Prasanna Shirol, Rare Disease Advocate https://validator.w3.org/feed/docs/rss2.html Met Dr. Sunil Dogra Race for 7-2026 – Biospectrum -Karnataka Health Minister assures State Rare Diseases Policy soon Speaker at Status of Rare Diseases India by ORF Rare Diseases In India: Why Early Diagnosis Is Still The Biggest Missing Link My Budget views in The Hindu -Business Line Speaker at CME at Jodhpur Faculty at AOCCN 2025, New Delhi Appreciation from Board of Genetic Counselling India My Article in Gujarat Authored Article : RESOLVE: Designing a collaborative care system beyond caretakers Being a Part as a Speaker in International Bio Banking Conference 2026 As a speaker in International Biobanking Conference 2026 Appreciation for Contributing to the Symposium by Manthan A Research and development Leadership Symposium 5th National Conference of HAE Society of India Participated as a Resource Person in National Conference On Progressive Disabilities Taken part as a Speaker in E-Clinical Forum Spring Workshop 2025 Thankfull note from CDFD Home-based education: Bridging the gap for children with disabilities – Citizen Matters Our Marriage Acknowledgement Letter Moderator at ISHG 23 conference on 23rd Jan 2024 in Ahmedabad 100 @ COE – IGICH Bengaluru Celebration MOU Signed with Centogene ISP Program on NF 1@KEM Meeting with Mr Vinay Sharma, Business Unit Head Rare Diseases India. CONCURED Conference New Delhi 7th April 2024 CONCURED Conference New Delhi 7th April 2024 Photo Gallery Novo Nordisk India partners with ORDI for Racefor7 Historic Initiative in Rare Disease Screening in Kolkata. Living on borrowed time: Tremendous cost of rare diseases in India TEDx Pune- Nov 2023 FICCI Rare Disease Conference in New Delhi on 20th Aug 2025 Photos of FICCI Meeting New Delhi Aug 2025 Honour by MIT WPU Pune at RIDE 2025 RIDE 2025 – MIT WPU – Pune Expert Advisor – Global Patient Meeting Keynote Speaker and Panelist in Reproductive Health User Meeting – ThermoFisher in Mumbai “Early detection of genetic diseases can bring down India’s infant mortality rate” Speaker at DICG and NATCO Roundtable meeting, New Delhi Thank you for your Service to Humanity! Conference and workshop on Wilson Disease Genomic Forum 2026 Supporting Worriers for the ALS/MND India Community since 2015 Received a gratitude for the patient support organization from the AEGIS of MOHEW Govt of India Speaker at Indian Society for Clinical Research HAE Patients Meeting Held In Bangaluru Under The Leadership of Mrs Pravalika Home My veiws -Duty cuts ease imports, rare disease costs remain crushing nationwide My Veiws in Duty exemption on rare disease drugs fails to address affordability crisis, says expert My Views -Budget cuts import costs of certain cancer & rare disease drugs. Why it offers little relief to patients Lysosomal storage disorders symposium – CDFD Hyderabad on 26th Nov 2025