International MPS Day observed in BJ Medical College and Civil Hospital, Ahmedabad.
Organised a “International MPS Day” on May 15th, 2013 at BJ Medical College and Civil Hospital, Ahmedabad on behalf of LSDSS. This was the first such meeting on Rare Disease in Gvt Hospital at Ahmedbad. Several Staff of the college and Hospital attaended the Meeting.
Dr M M Prabhakar – Medical Suprindent – Civil Hospital inagurated the MPS day.
MPS Day, 15 May 2013 –New Civil Hospital, Ahmedabad
| Time | Program | Details | |
| 10:00 pm | Registration | ||
| 10:15 – 10:20 pm | Welcome address | Dr KM Mehariya, HOD Paediatrics, Civil Hospital
Mr Prasanna Shirol, President LSDSS |
|
| 10:20- 11:20 | Continuous Medical Education Program on Lysosomal Storage Disorders with special focus on MPS | Dr Prakash S Gambhir | |
| 11:20 pm-11:30 pm | Need of the hour: Early diagnosis and detection of children with genetic diseases | Dr Prakash S Gambhir | |
| 11:30 – 11:40 pm | Medical facts about MPS and treatment availability/ How to increase awareness on MPS/How to improve diagnosis/How govt. can help its treatment | Mr Prasanna Shirol | |
| 11:40-11:50 pm | The need for more specialists, improved networking among medical experts to combat rare genetic disease / Why genetic screening of expectant moms is important | Dr Raju C Shah, Pediatrician, AICH, Ahmedabad | |
| 11:50- 12:30 pm | Patient Workshop | Patients and their families sharing experience | |
| 12:30-12:55 pm | Media Interaction : One-on-ones with patients and expert care givers | Patients –Suffering from MPS(Rare Diseases) and their families | |
| 12:55-1:00 pm | Vote of thanks | LSDSS | |
| 1:00 pm | Lunch | ||