Speaker at the 1st International Patient summit
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Read MorePhotographs of the Consultative Workshop on “Health Technology Assessment” (HTA) conducted by “Department of Health Research”, “Ministry of Health and Family Welfare” in India on 7th Dec 2023 at Habitat Centre, New Delhi. . The objective was to discuss the..
Read MoreRace for 7 Highlights ❖ Over 180 Participants & Two Patients ❖ 2nd Time in Kochi ❖ Event Flagged off by Mr.Vijay, ACP,Govt of Kerala ❖ Over 400 Participants & 25 patients ❖ 2nd time in Ahmedabad ❖ Event..
Read MoreORDI has inaugurated its first ” Rare Clinic” in Bengaluru on 10th Sept 2022. Dr Meenakshi Bhat – Clinical Geneticist, Centre for Human Genetics Inaugurated the Clinic, Cytiva Team Kavitha Subramaniam and Mr Vineet Inagurated OPD -1 room and also..
Read MoreORDI Conducted Medical Camp On Dated Oct 15th 2022 . Many patients came to the camp and made the Camp successful. There are 7000 Rare Diseases & 70Million Patients are there in India. The objective of this camp was to..
Read MoreORDI & TIGS conduct Rare Genetic Diseases Research Summit on Dated 24th & 25th Nov 2022. REDRESS-2022 is an indigenous and recurrent platform to bring together rare disease researchers and stakeholder work for the Indian Rare Genetic Disease Population ...
Read MoreORDI & HAE India have organized a conference on hereditary angioedema at Connaught Royal Hotel in New Delhi on Dated 18th Dec 2022. The Event is to understand the Burden of HAE and need the hour for taking the HAE..
Read MoreThis Workshop will l help ‘How to reach patients and careers’. Reaching and engaging patients is a challenge we all face. This workshop will be a great opportunity for patient organizations to come together and share our experiences, successes, challenges, and..
Read MoreThe children, most of whom are below 15 years, have rare congenital diseases called Gaucher disease, Fabry disease and Fanconi anaemia, among others. Over 300 children in India with rare diseases are currently unable to receive treatment because the Union..
Read MorePrasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental in national-level advocacy for Rare Disorders for the past 11..
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