Gallery | Prasanna Shirol, Rare Disease Advocate

Celebrating 15 years of Pompe Care which has saved lives of many including Nidhi Shirol

- April 15, 2021

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Pompe: A Rare Disease – Live discussion on News X on International Pompe Day

- April 15, 2021

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Book Launch function of my Father Prof B S Shirol

- March 16, 2021

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Race for 2021 photos

- February 28, 2021

Click Below link for more photos Race for 7 2021 bangalore..

We are honored to have the support of The Deputy CM of Karnataka, Dr. Ashwath Narayan, and #achondroplasia Warrior- #padmashri K Y Venkatesh

- February 25, 2021

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My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel.

- February 17, 2021

https://www.youtube.com/watch?v=KnZiSIhQGlE&feature=youtu.be My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel. https://twitter.com/NewsX/status/1361567000779104260 https://lnkd.in/gKtU-WZ https://www.facebook.com/Newsxonline/posts/10158441850417763 #advocacy #raredisease #rarediseasewarrior #policy #patients #geneticsmatter..

The Burden of Rare Diseases

- February 13, 2021

Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support patients such as Dhruti P from Mysuru...

Article published in “Indian Express” on 10th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year

- February 10, 2021

Raring to go Run for a cause at this 7km race, where you can learn more about 7,000 rare diseases and the importance of diagnosing them early By Express News Service BENGALURU: Prasanna Shirol is a man on a mission. Come Feb...

Virtual Rare Disease Consultation

- December 12, 2020

East Region Virtual Rare Disease Consultation on 12th December 2020 from 10:00 am to 2:00 pm..

4th Pediatric Bioethics

- November 30, 2020

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Race for 7 2020 Ahmedabad

- February 23, 2020

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80th Birthday of My father Mr B S Shirol

- February 3, 2020

On the 80th Birthday of My father Mr B S Shirol, ” Datti” was inaugurated on 3rd Feb 2020 by ” Karnataka Vidyavardhaka Sangha” Dharwad. ” Guru Vandana” Program was also organised by my Father. Datti was Donated jointly by Mr Prasanna Shirol, Dr Sarvamangala Shirol..

My 50th Birthday was celebrated in a simple manner by My Teammates of ORDI and Homely organics.

- February 3, 2020

Thanks to My Teammates from ORDI – Mr Swamy Jayappa and Mrs Pavithra Homely organics Team – Gowri, Teju, Guests – Dr Bhaskar Pai, Mrs Vaishali Pai, Mr Sridhar..

Visited our RDCCC at IGICH visit and appreciated the facility.

- January 17, 2020

Dr Sanjeeva Associate Professor -IGICH and and Mr Prasanna Shirol – ORDI Executive Director explained the activities of teh centre. Visited our RDCCC at IGICH visit and appreciated the facility by Dr Susan Holder Consultant Clinical Geneticist London Craniofacial Unit NHS Consultant Clinical Geneticist..