Today, I spent time with the family of Mr. Ameet and Mrs. Vijaylakshmi, whose twins have been in the ICU for three months since birth. Their newborn twins have been diagnosed with CCHS (Congenital Central Hypoventilation Syndrome), a rare genetic..
Read More
Who after me?? The Unspoken Dilemma of Rare Diseases Blog No 4 / WAM 1 Who after me? This is a regular question in the minds..
Read More
A new beginning for the world and for me Blog no 3 As we mark the start of a..
Read More
Right to HOPE Blog No 2..
Read More
Dear Well wisher, All of us have many thoughts, ideas, views, on the same subject and we often fail to express and sometime regret later. Many times louder voice is more heard than the softer or the correct one,..
Read More