My self and Sharada today visited to check on how Madiha a cute girl diagnosed with Pompe in Bijapur  is doing. We  were happy to see her activities and smile on their parents on improving health condition. Thanks to early diagnosis and access to treatment. Her fathers effort is commendable. Father Mr Arif was happily sharing her extra curricular activities like dance in school and community functions. Thanks to wonder drug Myozyme who is a beacon of hope for all Pompe patients in the world.

Madiha is one of the fortunate to get costly drug under Charitable access program of Genzyme and now Sanofi.