I was invited as a Speaker in Global Rare Diseases Conference on International Rare Disease day on 28th February 2021.

This was initiated by:  PPHF.

Co powered by :Takeda

Initiative Collaborators : National Health Mission, Govt of Karnataka, Govt of India, Govt of Chandigarh,

Supported” by Embassy of Japan

Co Hosted by: NITI Aayog

Strategic Partners – ORDI and other Patient Advocacy Groups, Cure SMA, LSDSS, Roche

Media Partner :ET Health World