I had the opportunity to meet, interact with Mr. Frédéric Oudéa, Global Chairman of the Board of Directors-Sanofi, along with other Board members ay Hyderabad on 10th Sept 2025. Mr Parameshwaran Dr Nishant were present from the India Team

I spoke about Nidhi Journey, My advocacy journey, Advocacy movements and development in India from the last 17 years, about ORDI work. The entire team was appreciative about my work.

In the morning there was a visit to  NIMS ( Nizam’s Institute of Medical Sciences)  Medical Genetics Department ( One of the Centre of Excellence (CoE) for Rare Diseases) They visited the OPD and Day care facility for Rare Disease patients, interacted with patients and their families Gaucher, Pompe  who had come in for ERT infusion and were given a brief overview of the patient journey and treatment progress by Dr. Prajnya Ranganath. My colleague Shravya Lakkula – Patient Navigator was also present.