24 Hours of Rare

I was a Panalist in the  24 Hours of Rare- Virtual Event

24 Hours of Rare is the only virtual event that celebrates the global rare disease community with content programmed by the rare disease community.

Brief about the programme

On February 27th, attendees with join us for a brief overview of the upcoming event and have the opportunity to schedule meetings with exhibitors and other attendees for the following week.

Then on February 28th, we will be highlighting the best of the global rare disease community, straight-up at noon, time zone by time zone. Don’t miss the amazing work being done by rare advocates, patients, medical professionals, and researchers around the world as we celebrate the global rare disease community, live from time zones around the world.

Come back on March 1st for a five-day series of panels, breakouts, workshops, and networking sessions focused on the topics and issues impacting the global rare disease community.

  • Day One – Patients
  • Day Two – Caregivers and Loved Ones
  • Day Three – Medical administrators, professionals, researchers, and students
  • Day Four – Medical foudations, non-profits, advocates, and NGO’s
  • Day Five – Tech and Industry
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