ACTRaD 2025, a National Conference focused on advancing Clinical Trials in Rare Diseases was conducted on 25th and 26th July at INSA ( Indian National Science Academy, New Delhi.

This was Co Organised by: TIGS (Tata Institute for Genetics and Society) , WWGM (World Without GNE Myopathy)  AIIMS Guwahati and Organization for Rare Diseases India

Knowledge Partners : ICMR (Indian Council of Medical Research ) and ISCR ​(Indian Society for Clinical Research)

Its an attempt to brainstorm on a few critical aspects of Rare Genetic Diseases. , especially the pressing need for greater sensitization and collaboration among all stakeholders, including researchers, clinicians, regulators, industry, and patient advocacy groups, for improving rare disease clinical trials in India.