This article from the Hindustan Times comes in mid of desperation from Rare Disease patients and families and as a hope for 2020. The tension is that, the silence for the of Ministry of Health on the announcement of the policy and the statement Mrs Preeti Sudan, secretary (health), government of India. “Yes, the ministry is finalizing the draft policy and it should soon be out for public consultation,” confirmed is the HOPE for 2020.

Thanks you Rhythma Kaul – Hindustan Times, New Delhi

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