I was a Panelist in Virtual session on “Stakeholder partnerships for rare disease in India- enhancing patient access conducted by

OPPI ( Organization of Pharmaceutical Producers of India)

1. Welcome by Ms Nitika Garg, Director Research and policy advocacy, OPPI
2.  Setting the meeting context by KG Ananthakrishnan, Director General OPPI
3.  Keynote address – “Enhancing access to patients with rare diseases”
   Smt. Roli Singh, Additional Secretary, Ministry of Health & Family Welfare, Government of India
4. Panel Discussion
   Moderator – Vani Manja, Managing Director Boehringer Ingelheim and rare diseases taskforce chair, OPPI
   Panellists:
   • L Swasticharan, Chief medical Officer, Ministry of Health
   • Prasanna Kumar Shirol, Executive Director, Organisation for rare diseases India (ORDI)
   • Dr. Madhulika Kabra, Professor Division of Genetics, Department of Paediatrics, AIIMS, New Delhi
   • Dr Ratna Devi Chair of the Board of Trustees at IAPO, Founding member IPAG
   • V Simpson Emmanuel, Managing Director, Roche, and rare diseases taskforce chair, OPPI
   • Dr Sanish Davis, President Indian society for clinical research (ISCR) R&D Director GCO Janssen India
5.  Keynote address – “No Disease Orphan by 2030: An Unsustainable Development Goal”
   Dr. Vijay Chandru, Commissioner at Lancet Citizen’s Commission Founder and Chairman, Strand Life Sciences
6. Closing remarks/ Vote of thanks -Mrs Asawari Sathaye, Director Communications and patient advocacy, OPPI