Race for 7 Media Release- My Quote

“Rare diseases are not really as rare as we think there are. It is estimated that there are 70 million rare disease patients in India and one out of every twenty Indians suffer from a rare disease,” said Prasanna Shirol, Founder Member, ORDI and father of a patient with a rare disease. “Through Race for 7, we want to amplify the voice of rare disease patients so that there is greater awareness created about the needs and challenges of the rare disease community. We invite the public of Bangalore to come out in large numbers to share their support for rare disease patients and their caregivers.”