Organised a “Media WorkShop” on behalf of LSDSS in Hyderabad -Andra Pradesh

Organised a “Media WorkShop” on behalf of LSDSS On Thursday, 21 June 2012 on Gaucher Diseases.  

Gaucher disease is a rare genetic disorder that affects an estimated 1 in 50,000 to 1 in 100,000 people in the general population

Present on the occasion:

§  16 month old baby girl who is suffering from the disease and her family, who will share what are they going through

§  Dr. A. Radha Rama Devi, Senior Consultant Pediatrician Incharge Genetic Division, Rainbow Hospital for Women and Children, Hyderabad

§  Mr. Prasanna Kumar B. Shirol, President & Karnataka State Coordinator, LSDSS

 

 

 

 

 

 

 

 

                                                                                                     

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