Experts call for action to make National Rare Diseases Policy a reality

Represented ORDI in Round table Discussion on Rare Diseases Policy -Deliberating the way forward on 27th July 2019 at India Habitat Centre, New Delhi organized by Health Issues India (https://www.healthissuesindia.com/)

This was moderated by Dr. Amir Ullah Khan, Former Head of Research, Bills and Mellinda Gates Foundation, Proffessor MCRHRDI, Govt of Telangana

Key Note 1 by : Dr Eshwar Reddy – Drug Controller General of India(DCGI),  Govt of India
Key Note 2 by : Dr S K Arora- Additional Director (Public Health) System Project Officer (SPO) Thalassemia Control & Geriatrics, Department of Health and Family Welfare, State of Delhi.

Other panalist are:
1) Dr Madhulika Kabra -Prof Division of Genetics, Department of Pediatrics, AIIMS New Delhi

2) Dr Anshu Sharma -Head Centre for Non Communicable Diseases and Biochemistry , NCDC

3)Dr Sanjeeva G N – Proffessor, Department of pediatrics, IGICH, Bengaluru

4) Dr Sailesh Mohan, Proffessor, Public Health Foundation of India, Joint Director, Centre for Chronic Conditions and Injuries(CCCI)

5) Dr Alok Bhattacharya, Prof and Head, School of Life Sciences, Ashoka Univercity, Founder GNE Myopathy

6)Dr Sonali Rawal, Technical Consultant-Health, NITI Aayog , New Delhi

7)Dr Chandrakant Lahariya, NAtional Proffessional Officer at WHO

8) Mr Saurabh Singh – LSDSS

9) Mrs Archana Panda – Cure SMA of India

Mr Samir Sethi – Rett Foundation, Mr Anil Choube- Indian Prader Willi Syndrome Association, Mrs Geetanjali -FSMA,