Need for Specific Health care policy, Scarcity of Specilized Doctors, Deleyed Dignosis and Treatment is the key issue. This is common for all Rare Disease parents and families.
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Address #16/2, Sri Krishna Krupa, 19th Cross, 8th Main, kashimutt Road, Malleshwaram, Bengaluru – 560055, Karnataka, India.
Contact Phone: +91 9980133300 E-mail: prasannashirol@gmail.com
