A new beginning for the world and for me
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A new beginning for the world and for me Blog no 3
As we mark the start of a new year on the English calendar, I extend heartfelt wishes for a joyous New Year and abundant blessings to all.
Many people take this opportunity for a new resolution and start one. I am not a fan of such resolutions for the new year. I am a man of instinct. If something comes to my mind and if I decide that becomes the resolution at that time. I am very good at practicing it and adhere to it most of the time. I am also reasonably disciplined in life from childhood. (I leave it to you to decide based on how you rate me). In spite of all the challenges in life in Managing Nidhi I tried my level best to maintain discipline. Probably this is the DNA continued from my father.
I had a resolution in the last week of 2019 when my personal website was started www.prasannashirol.com to write blogs. I did write a blog but never continued. Here is the link: https://prasannashirol.com/category/blog/
It was difficult for me to concentrate on managing, taking care of Nidhi, Arranging and managing her regular requirements, ORDI commitments, Travelling etc.
But this year is different for me and for Sharada,
– It’s a time to travel with emptiness,
– Time to travel with memories,
– Time to learn, talk and understand family members and others differently (Earlier it was only about Nidhi),
– Time to look back and recall all the challenges and happiness in the last 24 years as a father of a Rare Disease child.
– Time to renew learnings and use them to support more and more patients,
– Time to see Nidhi in every Rare Disease Child / patient (In fact when I decided to leave my job and concentrate on this Advocacy Journey, it was chosen to support all Rare Disease children and not just for Nidhi) Nidhi was a reason and Nidhi gave us a purpose in our life. Today whatever I am it is because of NIDHI
– Time to catch up those little things missed in life
– Time to attend marriages, functions, Birthday parties and parties
– Time to travel to meet friends and relatives, holidays, and to unknown places.
In a way, A New Way of Life. Everyone starts a Second innings after 50’s but for us it is the beginning of our 1st innings.
All these years the majority of the people have been asking me to document my experiences through a book or blog.
Now I have some extra time and may be utilising that time to reflect on all those experiences, about people, about places, doctors, Hospitals, patients etc. I am known for speaking from heart and many times many do not like it.
Hope you enjoy these blogs and encourage me with feedback in days to come.
Once again, wish you Happy New Year filled with possibilities, growth, and the promise of sharing and learning together. Happy New Year 24!
It is indeed another beginning for Sharada and you! Using Nidhi’s inspiration, celebrating her life, it is time to press restart! May God give you both the strength.
Dr. Rajani Battu – Medical Director at Centre for Eye Genetics and Research. Co-founder & CMO, Eyestem. Senior Consultant in Vitreoretina, Aster CMI Hospital. Adjunct Faculty, IBAB – Linked in Comment
Wish you all the best Sir. You have always been a source of inspiration & I keep talking about you to my Family. Although our professional journey together was short, but I’m glad we kept in touch all these years. And will continue to do so.
Thank you Mr Sunil
Read this yesterday on LinkedIn sir. Some very beautiful thoughts from you. Wishing you and ma’am a happy new year and new beginnings. ❤️
May you continue to bless the lives of all who do now, and will be going forward, touched by your warmth and dedication to the well-being of all of us
You have been wonderful parents. Yes that should be the spirit. I am sure your daughter lives in all your endeavours. Best wishes
Thank you sir for your support in this journey during Reliance days.
Well written Prasanna Sir …
Wish you and Sharadha happiness, good health, wealth and extra energy on the beginning of the new innings….
Happy New Year Prasanna.
It is very difficult to inculcate Discipline while also going through the Challenging time that you have gone through.
My Gratitude to you on behalf of parents whom you are guiding and bringing in a Support System to manage the Challenges you have gone through.🙏
very inspiring and touching blog sir,
many people buckle down under such situations, you are a Live example of how to handle tough times and at the same time making the world a better place for people with rare challenges