As per Organization for Rare Diseases India (ORDI), the National Policy for Rare Diseases, 2021 abridges the ‘right to health’ by ignoring the true needs of rare disease community in India File photo: Children suffering from rare diseases at an..

Attended the  UDNI Patient Engagement Meeting,  planning how to bring more of the patients’ perspective into UDNI.  ..

Rare Disease is any disease that affects a very less percentage of a population. Many rare diseases are serious, chronic, and progressive in nature while most rare diseases children do not get to see their 5th birthday. Although an estimated..

click below Link: http://www.pharmabiz.com/NewsDetails.aspx?aid=135938&sid=1 Nandita Vijay, Bengaluru Saturday, March 6, 2021, 08:00 Hrs  [IST] The Organisation of Rare Diseases of India (ORDI) has urged the Union government to increase the Rastriya Arogya Nidhi (RAN) grant of Rs. 15 lakh and allocate..

I was a Panalist in the  24 Hours of Rare- Virtual Event 24 Hours of Rare is the only virtual event that celebrates the global rare disease community with content programmed by the rare disease community. Brief about the programme..

I was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups”  Archana Panda (Cure SMA) – Moderator Sheela Chitnis (MSSI) Bhushan Ghate (ASWS) Prasanna Shirol (ORDI) Gautam Dongre..

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