CHG-Research and Training unit of RD Foundation Stone laying Ceremony
- -
..
Read More
Category Archives: Gallery
300 kids await treatment cash
- -
The children, most of whom are below 15 years, have rare congenital diseases called Gaucher disease, Fabry disease and Fanconi anaemia, among others. Over 300 children in India with rare diseases are currently unable to receive treatment because the Union..
Read More
Interview with Snigdha
- -
Prasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental in national-level advocacy for Rare Disorders for the past 11..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 02
- -
Link for original video : https://youtu.be/d5n5RQwYH8s..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 03
- -
Link for original Video : https://youtu.be/NegGxkxFZB8..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 04
- -
Link for original Video : https://youtu.be/rCTjJ7o4o2w..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 05
- -
Link for original video : https://youtu.be/vPRsxJ9X-v0..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 06
- -
Link for Original Video : https://youtu.be/-qgtv7o-cdg..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 07
- -
Link for original video : https://youtu.be/mgDxW7udB5U..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 08
- -
Link for original video : https://youtu.be/NbWBTqJ5B5A..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 09
- -
Link for original video : https://youtu.be/81MNTzLYWgg..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 10
- -
Link for original video : https://youtu.be/Qk6nLRMNBZM..
Read More
ORDI – Race For 7 – 2022 – Voices From Parents And Patients – 11
- -
Link for original Video : https://youtu.be/FEZ3mLcE5m4..
Read More
ORDI – Race For 7 – 2022 – Sharada Shirol -Voices From Parents And Patients – 12
- -
Link for original Video : https://youtu.be/FG4bEpfo9fk..
Read More
An appeal for Orphan Drug Policy and National Policy for Rare Diseases
- -
Appealed to Dr Ashwathnarayan C. N., Honorable Minister for IT BT and ST – Govt of Karnataka, for implementing “Orphan Drug Policy” for the state of Karnataka and “National Policy for Rare Diseases” in the state on 5th Aug 2022..
Read More