BGCI Conference at JSS College
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Category Archives: Gallery
‘Brainstorming for Rare Diseases in India’
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I Participated in a meeting of the Patient Advocacy groups for Rare Diseases regarding the ‘Brainstorming for Rare Diseases in India’ which was scheduled under the Chairpersonship of Dr. Swasticharan L., Addl. DDG & Director EMR on 31st January 2022 at 03:00pm. He Represented the ORDI..
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Early Screening or Detection Makes Metabolic Disorders In Babies Manageable: Experts
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Inborn error of metabolism (IEM) is a spectrum of diseases that can affect the normal metabolism in children, said doctors. Screening of newborns or screening of parents during the pre-natal period can help detect inborn metabolic disorders in children that..
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India Rare Disease Summit 20th October 2021
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Link For The Video:- https://event.on24.com/eventRegistration/console/EventConsoleApollo.jsp?simulive=y&eventid=3478701&sessionid=1&username=&partnerref=&format=fhvideo1&mobile=&flashsupportedmobiledevice=&helpcenter=&key=BB122263B173CC975B112526A3A02945&source=VC-2303987&newConsole=true&nxChe=true&newTabCon=true&consoleEarEventConsole=false&text_language_id=en&playerwidth=748&playerheight=526&eventuserid=484161919&contenttype=A&mediametricsessionid=419715217&mediametricid=4883121&usercd=484161919&mode=launch..
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Two Different Lives, Two different stories One Rare Disease
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With little support from the government, a faulty gene puts families with #Rarediseases in India, in a never-ending odyssey! Meet the Pompe Warriors, 2 Different Lives, and their unique stories. They chose to thrive with passion, love, and hope besides..
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Invitation received from Sri Sri Ravi Shankarguruji
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Fortunate to get invitation from @SriSri for An evening with Gurudev to celebrate 40 years of service to #Humanity. Feeling happy to be part of achievers in various field. Thanks to@ORDIndiafor this opportunity Invitation for the Event -An Evening..
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Race for 2021 photos
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Click Below link for more photos Race for 7 2021 bangalore..
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My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel.
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https://www.youtube.com/watch?v=KnZiSIhQGlE&feature=youtu.be My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel. https://twitter.com/NewsX/status/1361567000779104260 https://lnkd.in/gKtU-WZ https://www.facebook.com/Newsxonline/posts/10158441850417763 #advocacy #raredisease #rarediseasewarrior #policy #patients #geneticsmatter..
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The Burden of Rare Diseases
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Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support patients such as Dhruti P from Mysuru...
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Article published in “Indian Express” on 10th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year
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Raring to go Run for a cause at this 7km race, where you can learn more about 7,000 rare diseases and the importance of diagnosing them early By Express News Service BENGALURU: Prasanna Shirol is a man on a mission. Come Feb...
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Virtual Rare Disease Consultation
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East Region Virtual Rare Disease Consultation on 12th December 2020 from 10:00 am to 2:00 pm..
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