Sit In Protest Invitation by Rare Disease Children -LSD
- -
Sit In Protest Invitation by Rare Disease Children -LSD..
Read More
Category Archives: Gallery
Nidhi Story in Kasturi News during Peace protest in Bengaluru, Karnataka
- -
India’s first Pompe Patient Nidhi Shirol , Sharada Shirol during Dharana to appeal for Treatment to Govt of Karnataka in Kasturi NewsLSD (Rare Disease) Patients appeal for Treatment to Govt of Karnataka in Kasturi News..
Read More
After many years met high school classmate Onkar Ainapur
- -
After many years met high school classmate Onkar Ainapur. He is now a professor in Goa Govt College..
Read More
Media Coverage of PAtients protest ijnBengaluru
- -
Janashri TV channel Media Coverage of Patients Peace protest in Bengaluru..
Read More
Appeal to Karnatka Govt by Rare Disease patients in Karnataka
- -
Samaya TV coverage during Press Meet -Appeal to Karnatka Govt by Rare Disease patients in Karnataka ..
Read More
Receiving first Donation to RDCCC Project of ORDI from Mr Naz – CEO Quintiles.
- -
Receiving first Donation of Rs 25 Lakhs under “Cosprate Social Responsibility”(CSR) to ORDI from Mr Naz – CEO Quintiles towardssetting up of RDCCC ( Rare DIsease Care Coordination Center) ..
Read More
At Rainbow Across Border -Meeting in Singapore with Asia Patient Leaders Support groups Meeting 2014
- -
At Rainbow Across Border -Meeting in Singapore with Asia Patient Leaders Support groups Meeting 2014..
Read More
Media Interaction In Hyderabad request to AP govt
- -
Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate. ..
Read More
About Pompe in Udaya T V-Sanjeevini
- -
About Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from Pompe...
Read More
IMER – Samhita 12- Alumni Meet Belgaum
- -
IMER – Institute of Managment and Education and Research of KLS Lawa Societies Belgaum conducts “Samhita ” Alumni Program every Year. In 2013 I was I was honoured with “Alumni Achiever” on the occasion of 22nd foundation Day. This is one..
Read More
Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh
- -
Prasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds. ..
Read More
Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil KBC version in Vijaya TV in Chennai -Press Meet
- -
Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
Read More
LSDSS Video
- -
..
Read More
Visit to Raja House to meet his son diagnosed with Gaucher in Chennai
- -
My passion to learn how each patients live in their house and to understand the family condition, How each parents with Rare Disease feel, Plan and take care of their loved one. This is a great learning form me to..
Read More
CME in Ahmedabad- Gujrat
- -
CME on LSD was organised to create awareness about Treatable LSD in Ahmedabad , Gujrat on 8th April 2012. THis was in association with Dr JAyesh Seth from Institute Of Human Genetics. Dr Seema Kapoor- MAMC, Delhi, Dr Mamta Muranjan-..
Read More
