Participated in the first ever meeting of Shire in Mumbai – India to discuss the Standard Operating Procedure to start a Humanitarium Program. This is the effort of 3 years continues lobbying with company and throgh MPS society – UK. ..
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Speaker at CME on Metabolic Diseases in Pediatric Practice and presented activities of LSDSS organized by department of Pediatrics, SAT Hospital Medical College, Thiruvananthapuram..
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This day is a special day. After continues effort of Advocacy, Several meeting with Chieif Minister, HEaltH Minister, Health Secretory, Followup from LSDSS Delhi team, with Delhi Govt. This letter was a Point of HOPE...
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This is a video of Nidhi Shirol- 12 year old girl having a ultra rare genetic disorder called “Pompe”. Nidhi Shirol is also First Pompe PAtient in India. This is produced by LSD Support Society for public awareness...
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We had arranged a Press meet in Chennai to announce formally the support of Mr Karthi Sivakumar- Leading cine actor in Tamilnadu and South India as a “Cause Ambassador” to LSDSS( Lysosomal Storage Diseases Support Society. ..
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Attended “Patient Group Leader Meeting” in Hong Kong on April 15, 2011, Alongwith Mr Manjit Singh...
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This one of the initial awareness on Genetic and Rare Diseases in Karnataka. This is a starting point of Advocacy in Karnataka. This also has my story as a father doing everything to save my daughter Nidhi. https://bangaloremirror.indiatimes.com/bangalore/others/the-trouble-is-relative-say-docs/articleshow/21795729.cms ..
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