APRED( Association of People with Rare Eye Diseases) Support group Launch
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Category Archives: Photo Gallery
1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI’s First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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APRED( Association of People with Rare Eye Diseases) Support group Launch
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Organized and Launched a special support group for persons with RP (Retintis Pigmentosa).Association of People with Rare Eye Diseases.ThiswasLedbyMrSubramani who is working With Deccan Herald and Smt Anadi Vishwanathan. The book “Lights OUT” written by Mr Subramni was also introduced..
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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Asia-Pacific Allianoard Meece of Rare Disease Organizations ( APARDO)- 1st Board Meeting
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015. Under the leadership of Mrs Durhane Wong-Rieger,President & CEO-Canadian Organization for Rare Disorders. This is the first Board Meeting. Mr Bill Claxton, Dr Ratnadevi from IAPG and others..
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015. Under the leadership of Mrs Durhane Wong-Rieger,President & CEO-Canadian Organization for Rare Disorders..
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1st Rare Disease Camp in Hatti Gold mine, Raichur, Karnataka
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Conducted first Rare Disease Camp in Hatti Gold Mine- Raichur..
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ORDI Poster Presentation in Rare Disease Asia Conference 2015- Love Is Not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . We Presented a Poster on ORDI -RDCCC for the first time and received lot appreciation for the concept...
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Rare Disease Asia Conference 2015 – Love is not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . I was one of the Organizing Committe Member on behalf of ORDI and Alos Member of the faculty at the inagural. I also Partipated in the panel..
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Rare Disease Asia Conference 2015- Love Is Not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . I was on eof the Organizing Committe Member on behalf of ORDI. I also Partipated in the panel Discussion ” Landscape of the Support Networks for Rare..
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Peace Protest demanding treatment for LSD patients in Bengaluru
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Organized a Peace protest demading the treatment from Govt of Karnataka. More than 40 Patients and 100’s of Family members , Care givers and other stake holders participated. Media support was very good. This event was very successful and finally..
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After many years met high school classmate Onkar Ainapur
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After many years met high school classmate Onkar Ainapur. He is now a professor in Goa Govt College..
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Receiving first Donation to RDCCC Project of ORDI from Mr Naz – CEO Quintiles.
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Receiving first Donation of Rs 25 Lakhs under “Cosprate Social Responsibility”(CSR) to ORDI from Mr Naz – CEO Quintiles towardssetting up of RDCCC ( Rare DIsease Care Coordination Center) ..
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At Rainbow Across Border -Meeting in Singapore with Asia Patient Leaders Support groups Meeting 2014
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At Rainbow Across Border -Meeting in Singapore with Asia Patient Leaders Support groups Meeting 2014..
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IMER – Samhita 12- Alumni Meet Belgaum
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IMER – Institute of Managment and Education and Research of KLS Lawa Societies Belgaum conducts “Samhita ” Alumni Program every Year. In 2013 I was I was honoured with “Alumni Achiever” on the occasion of 22nd foundation Day. This is one..
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil KBC version in Vijaya TV in Chennai -Press Meet
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
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Visit to Raja House to meet his son diagnosed with Gaucher in Chennai
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My passion to learn how each patients live in their house and to understand the family condition, How each parents with Rare Disease feel, Plan and take care of their loved one. This is a great learning form me to..
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