Email Received Dear Mr. Shirol, I just saw an Instagram video that mentioned your work with rare diseases in India. I wanted to thank you from the bottom of my heart for all of your hard work; it is so..
Read MoreThank you Mr Prasanna. It was a pleasure and honor to be part of the Race for 7 event in Hyderabad. I think you and your team are doing an amazing job in helping patients & families with rare diseases...
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This was gifted to us by Melissa Araluppan a couple of months after Nidhi went to heaven. This was the poem written by her mother. She has used a photo from Racefor7. My relation started with Melissa when she was..
Read MoreDear Mr. Prasanna Shirol, On behalf of IOIF I wanted to take a moment to express my heartfelt gratitude for allowing us to sell calendars to raise funds for the treatment of patients with Osteogenesis Imperfecta (OI). Your willingness..
Read More“I am very pleased about your achievement. Richly deserved” Dr Meenakshi Bhat Consultant in Clinical Genetics MBBS, MD (Paed), DCh, DNB (Paed), MRCP (Ire), CCST-Clinical Genetics (UK) On receiving Global Gene “Rare Champion of Hope 2019” award..
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“Prasanna Shirol’s name has been synonymous with cause of Rare Diseases in India. Its people like Prasanna who can bring about a tangible change in society through their untiring, focused and selfless efforts. I wish him success in all his..
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“I have been witnessing his passion for the cause children with Rare Disease since the inception of his organization.”..
Read MoreI am glad to inform you that, my Government has agreed pay for my sons treatment Exon Skipping Therapy for DMD for a period of 6 month under medical policy for Govt employee. I am sending you the order copy...
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