@ APARDO Meeting Manila
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Category Archives: Uncategorized
MOHFW and WHO conducted the 2 days National Symposium On Rare Diseases in Udaipur
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I was a Invitee and a Speaker at the 2 days National Symposium On Rare Diseases in Udaipur jointly conducted by MOHFW ( ministry of Health and Family Welfare and WHO – India office. This was the first meeting by..
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Visited our RDCCC at IGICH visit and appreciated the facility.
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Dr Sanjeeva Associate Professor -IGICH and and Mr Prasanna Shirol – ORDI Executive Director explained the activities of teh centre. Visited our RDCCC at IGICH visit and appreciated the facility by Dr Susan Holder Consultant Clinical Geneticist London Craniofacial Unit NHS Consultant Clinical Geneticist..
Read MoreAug 2019 – Other Activities
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12th Aug– Today visited 3 Senior Citizen Home to evaluate the option for Rare Home Project from Pompe Foundation. Visited Vishranti JJM Visited – Daugher of Ranjini – Basaveshwaranagar – Rare Disease Family..
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2nd All India PAG ( Patients Advocacy Meeting at Delhi
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Organized a ORDI’s Second all India PAG ( Patients Advocacy Group) Meeting at New Delhi More than 20 PAg attended the meeting ...
Read MoreWrote letter to Chief Minister of Maharastra
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Wrote letter to : Hon’ble Shri Prithviraj Chavan Chief Minister of Maharashtra Mantralaya, MUMBAI Requesting for Treatment support to LSD (Lysosome Storage Diseases) for patients in Maharashtra...
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