Dr Jagadish Chinnappa – Head Pediatrics-Manipal Hospital Bengaluru
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“I have been witnessing his passion for the cause children with Rare Disease since the inception of his organization.”..
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Tag Archives: Corporate Social Responsibility
Race for 7 -2019 -Delhi @ IGIB Gound
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Race for 7 in Delhi for 2019 was conducted in IGIB – Institute of Genomics and Integrated Biology. All the Delhi Based PAG and patients group participated. We conducted Race for 7 in 11 cities in the 2019 version...
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Business Line Chang Maker Award – Nominee
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ORDI was nominated to the prestigious” The Hindu Business Line Change Maker award” for the year 2019. ..
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Race for 7 -2019 -Coimbatore @ PSG Hospital Ground
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It was a memorable day for ORDI -Racefor 7 and for me to get Mr Narain Karthikeyan – First Formula One driver from India to flag off in Coimbatore in Tamilnadu. This event was conducted in PSG Hospital ground. With..
Read MoreThis Father’s PIL Could Change The World For Indians Suffering From Rare Diseases
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This Father’s PIL Could Change The World For Indians Suffering From Rare Diseases What’s also important to note is that these rare diseases are country specific. For instance, malaria is not considered a rare disease in India, but it is..
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2nd All India PAG ( Patients Advocacy Meeting at Delhi
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Organized a ORDI’s Second all India PAG ( Patients Advocacy Group) Meeting at New Delhi More than 20 PAg attended the meeting ...
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI’s First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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TRIBUTE to CHAMPIONS of HOPE
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One of the prestigious moment to get this appreciation letter and nomination to Global Gene -Rare Champion of Hope -2015. This is the recognition of Rare Disease efforts in India. We are now being noticed at Global level...
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Peace Protest ( Dharana) by LSD patients in Bengaluru
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Organised a Peace protest on behalf of LSDSS in Bengaluru . More than 30 families came attended to demand treatment to their children diagnosed with LSD diseases like Pompe, Gaucher, MPS, Fabry etc. This was well received by the media...
Read MoreGSD Meeting and International Pompe Meeting Heidelberg, Germany 2013
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Attended International GSD Meeting and International Pompe Meeting at Heidelberg, Germany 2013 ..
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World Rare Disease Day 28th Feb 2012, Mumbai, Singer Mr Shaan blessed the Occasion
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Conducted the World Rare Disease Day for the 3rd year in Mumbai Jointly with KEM hospital Mumbai. Singer Mr Shaan blessed the occasion. Dr Mamata Muranjan and all the Gentic doctors from India attended the function...
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World Rare Disease Day 28th Feb 2011, Chennai. Actor Karthi Shivakumar blessed the Occasion
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World Rare Disease Day 28th Feb 2011, Chennai. Actor Karthi Shivakumar blessed the Occasion. This was jointly organised by LSDSS and Fetal Care Research Foundation Health Secretory was the Chief Guest. Dr Suresh from Fetal Care Research Foundation, Dr Sujatha..
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Meeting with Mr Dinesh Trivedi – Minister of State Health and Family Welfare New Delhi
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Meeting with Mr Dinesh Trivedi – Minister of State Health and Family Welfare New Delhi. Reqested for treatment of LSD patients in India...
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Meeting with DBT Officials – New Delhi
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Meeting with DBT Officials – New Delhi discussed possible intervention from scintific side for supporting LSD and Rare Disease...
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12th Annual Asia LSD Symposium (Oct 9-11,2009) at Taipei, Taiwan
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For the first time attended oversees LSD Symposium (Oct 9-11,2009) at Taipei in Tiwan. This was a eye opener in my life. The progress this country has made in Rare Disease Diagnosis and Management is amazing. Looking back my flight..
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