It was my privilege to be a panelist in BMJ South Asia Research Forum 2026, held on 5 September 2026 at Shangri-La Eros, New Delhi.

This Theme of the conclave was: “Driving Real-World Impact from Health Research”-“Future of Health Research in India.”

I represented the Rare Disease community in a session Community Voice Panel:

“Nothing About Us Without Us,”

It was a good occasion to bring the Rare Disease voice in a Community Health discussion alongside senior and distinguished Community or Public Health Champions

Padma Shri Dr Abhay Bang, Co-founder SEARCH, Gadchiroli

Prof K Srinath Reddy – Chancellor Institute of Public Health Science (Deemed to be University)

Dr Narendra Kumar Arora, President AIIMS Bilaspur

and was Chaired by Dr B S Garg, Secretary, Kasturba Health Society, Director, Dr Sushila Nayar School of Public Health, Mahatma Gandhi Institute of Medical Sciences, Wardha, Maharashtra

I was able to bring the attention of research need for Rare disease in absence of treatment to more than 95% conditions and why India need local research to produce low cost and sustainable treatment
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The day long discussion was able to bring the focus on Health Care Policy, Infrastructure, Role of Private Institutions, and patient engagement etc.

A special thank you to the BMJ team for​ Inviting me and for opportunity.

​#ORDI #RareDseases #BMJResearchForum #ClinicalResearc # ICMR #MOHFW # PHFI #PublicHealth #nitiaayog