Today was happy to receive a confirmatory letter for Govt of Karnataka on implementation of NPRD 2021 in the state. This is the first state to implement in the country. Earlier Karnataka was the first state in the country to..

Read more at: https://bangaloremirror.indiatimes.com/bangalore/others/spreading-hope-about-spinal-muscular-atrophy/articleshow/93863456.cms?utm_source=contentofinterest&utm_medium=text&utm_campaign=cppst..

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to handle and live with. The..

August 29, 2022: The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to handle and live with. The..

Bangalore Baptist Hospital teams up with Organization for Rare Disease India (ORDI) to fight spinal muscular atrophy. Globally the month of August is commemorated as spinal muscular atrophy awareness month. SMA, a progressive disease that robs a?ected people of their..

August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs affected people of their ability to walk, breathe and swallow is the leading cause of inherited death in babies. It has an incidence of around 1 in 6000. Rare diseases like SMA are difficult to handle and live with. The advent of revolutionary newer therapies has..

We Care For SMA: Fighting Spinal Muscular Atrophy Organised At Bangalore Baptist Hospital The world over, August is commemorated as Spinal Muscular Atrophy (SMA) awareness month. SMA, a progressive disease that robs a?ected people of their ability to walk, breathe..

Abstract Rare diseases are those diseases that are not seen frequently in a population. There are about 7000 rare diseases that have been identified worldwide, and 80% of them are caused by genetic changes. Since a small number of individuals..

Of all cases of rare diseases across the globe, around one-third occur in India. Yet, these diseases—‘rare’ because they affect a relatively small number of people—are hardly given attention in the country. With its resource constraints, India continues to lag..

Since the diagnosis, on an average, the parents have been spending close to ₹50,000 every month and Palaash has now been advised to undergo surgery that will cost close to ₹20 lakh. Four-year old Palaash was detected with a rare genetic abnormality..

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Since the diagnosis, on an average, the parents have been spending close to ₹50,000 every month and Palaash has now been advised to undergo surgery that will cost close to ₹20 lakh. Four-year old Palaash was detected with a rare genetic abnormality..

The total amount of donations channelled to the rare diseases portal is Rs 1.18 lakh till date, Bharti Pravin Pawar, minister of state for health and family welfare, told the Lok Sabha on March 25 A government initiative to crowdfund..

In places like Saharanpur and Buldhana, a rare genetic disease has been taking away control of bodies, lives and livelihoods from entire neighbourhoods. Against all odds, a few scientists and doctors are determined to ease the pain. When I met..

Opportunity to be speaker along with Dr K Vijay Raghavan – Principal Scientific Advisor to Govt of India and he was also one who inagurated ORDI. This discussion of “Status of Rare Diseases Today” was organized by ORF (  Observer Research..

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