Receiving first Donation of Rs 25 Lakhs under “Cosprate Social Responsibility”(CSR) to ORDI from Mr Naz – CEO Quintiles towardssetting up of RDCCC ( Rare DIsease Care Coordination Center) ..
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At Rainbow Across Border -Meeting in Singapore with Asia Patient Leaders Support groups Meeting 2014..
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Represented in India in Orphan Drug Asia 2014 in Singapore. We discussed on “Addressing Gap in Special Health care Needs for Rare Disease Patients in India”. ..
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Particpated to support the Global Launch of “Primary Immune Deficiency Week” (PI) Week in Delhi conducted by Indian Patients Society for Primary Immunodeficiency – IPSPI, India on 22nd April 2014. This was superheaded by Mrs Ruby Chawla – Founder and..
Read MoreOrganized a World Immunology Day in association with Primary Immune Deficiency Patients Welfare Society at Bengaluru Medical College Hospital..
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Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate. ..
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About Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from Pompe...
Read MoreAttended International GSD Meeting and International Pompe Meeting at Heidelberg, Germany 2013 ..
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Continued Medical Education (CME) on Lysosomal Storage Disorder (LSD) and Primary Immune Deficiency (PID) on 31st Aug 2013 at Indira Gandhi Institute of Child Health to create a awareness. This was inagurated by Dr Premalatha- Director IGICH, Dr Benakappa –..
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Participated in Mumbai Marthon in 2013 along with Ms Sangeeta Barde- Co-founder and Director, Team of volunteers lead by Mr Kingshuk Ganguly . This was one of the first ORDI outdoor Awareness event. We also had the opportunity to speak..
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Orphan Drug Congress Singapore 2013. As a Speaker spoke on Opportunities for Orphan Drug companies in India . In Panal Discussion we discussed on Collaboration of Mutually Favorable Outcome for Patient Groups and Industry Players in Asia Pacific...
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IMER – Institute of Managment and Education and Research of KLS Lawa Societies Belgaum conducts “Samhita ” Alumni Program every Year. In 2013 I was I was honoured with “Alumni Achiever” on the occasion of 22nd foundation Day. This is one..
Read MoreOrganised a “International MPS Day” on May 15th, 2013 at BJ Medical College and Civil Hospital, Ahmedabad on behalf of LSDSS. This was the first such meeting on Rare Disease in Gvt Hospital at Ahmedbad. Several Staff of the college..
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Prasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds. ..
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
Read MoreWritten Letter to Dr S R Chauhan, Medical Commissioner , Employees State Insurance Corporation, New Delhi, India on behalf of LSDSS requesting treatment to Dharmendra and Vishal suffering from MPS( Mucopolysachirodisis) who are a beneficiary of ESI card...
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