Activities - Prasanna Shirol, Rare Disease Advocate

Fighting an unusual Disorder with Extraordinary Will

- February 28, 2010

Fighting an unusual Disorder with Extraordinary Will This was the first article Published in India on the ocasion of World Rare disease day- New Delhi. This has halped many Rare Disease parents in India to come out of the stigma...

12th Annual Asia LSD Symposium (Oct 9-11,2009) at Taipei, Taiwan

- October 9, 2009

For the first time attended oversees LSD Symposium (Oct 9-11,2009) at Taipei in Tiwan. This was a eye opener in my life. The progress this country has made in Rare Disease Diagnosis and Management is amazing. Looking back my flight..

4th International Conference on Birth Defects and Disability in the Developing World, New Delhi

- October 4, 2009

Attended the “4th International Conference on Birth Defects and Disability in the Developing World, New Delhi” This conference has shaped my mind to do something about Rare Diseases and Disabilty and inclusivity in India and this a turning Point...

Mrs Padmaja Ramana from Boston visited home to meet Nidhi

- April 12, 2009

Mrs Padmaja Ramana -NRI from Bengaluru who now stays in Boston visited to see Nidhi in Bengaluru..

Keeping a Fine Balance – Business World by Gauri Kamath

- February 2, 2009

This is the first article on Rare DIsease In India about Genzyme starting their operations. Mrs Gauri Kamath of Business World has nicely covered the situation of Orphan Drugs in India. Mr Henri Termeer a grat visonary and a kind..