Organised a “International MPS Day” on May 15th, 2013 at BJ Medical College and Civil Hospital, Ahmedabad on behalf of LSDSS. This was the first such meeting on Rare Disease in Gvt Hospital at Ahmedbad. Several Staff of the college..
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Prasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds. ..
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
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Written Letter to Dr S R Chauhan, Medical Commissioner , Employees State Insurance Corporation, New Delhi, India on behalf of LSDSS requesting treatment to Dharmendra and Vishal suffering from MPS( Mucopolysachirodisis) who are a beneficiary of ESI card...
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Written Letter to Honourable Chief Minister Mrs Mamata Banarjee, West Bengal to save the child Suffering from Gaucher in Kolkotta...
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Wrote a Letter to Mr Mallikarjun Kharge – Union Minister for Labour and Employment for Treatment support to 2 patients Dharmendra and Vishal diagnosed with MPS ( mucopolysaccharidosis) This helped in opening a treatment option in ESI and also for..
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My passion to learn how each patients live in their house and to understand the family condition, How each parents with Rare Disease feel, Plan and take care of their loved one. This is a great learning form me to..
Read MoreToday sent request letter to Shri Narendra Modi , Honorable Chief Minister of Gujarat Ahmedabad, Gujarat. and Shri Jay Narayan Vyas ,Honorable Minister of Health & Family Welfare Government of Gujarat, Ahmedabad, Gujarat. Requesting for Requesting for creation of a special fund for..
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Today written letters to Andra Pradesh Govt requesting to Request to provide Enzyme Replacement Therapy (ERT) to Baby Harshini (16 months) Mr. N Kiran Kumar Reddy, Hon’ble Chief Minister ,Govt. of Andhra Pradesh,Hyderabad Sri. K. Murali Mohan, Minister for Medical Education,..
Read MoreOrganised a “Media WorkShop” on behalf of LSDSS On Thursday, 21 June 2012 on Gaucher Diseases. Gaucher disease is a rare genetic disorder that affects an estimated 1 in 50,000 to 1 in 100,000 people in the general population Present on..
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CME on LSD was organised to create awareness about Treatable LSD in Ahmedabad , Gujrat on 8th April 2012. THis was in association with Dr JAyesh Seth from Institute Of Human Genetics. Dr Seema Kapoor- MAMC, Delhi, Dr Mamta Muranjan-..
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Conducted the World Rare Disease Day for the 3rd year in Mumbai Jointly with KEM hospital Mumbai. Singer Mr Shaan blessed the occasion. Dr Mamata Muranjan and all the Gentic doctors from India attended the function...
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Participated in the first ever meeting of Shire in Mumbai – India to discuss the Standard Operating Procedure to start a Humanitarium Program. This is the effort of 3 years continues lobbying with company and throgh MPS society – UK. ..
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Wrote a Letter to Lokasabha Secretory for treatment support to Rare Diseases – LSD ( Lysosomal Storage Disorders patients on 27 Aug 2011..
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Speaker at CME on Metabolic Diseases in Pediatric Practice and presented activities of LSDSS organized by department of Pediatrics, SAT Hospital Medical College, Thiruvananthapuram..
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