Lifestyle / Health & Wellness Rare disease hero: Indian dad whose daughter suffers from Pompe has done wonders for similar kids across the country Priti Salian Published: 10:30am, 3 Mar, 2021 Prasanna Shirol used his experience accompanying his daughter for lengthy medical..
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I was a panalist in Asia Pacific Patient Innovation Summit 2021. Topic of the India Hub : “Establishment and governance of patient groups” Archana Panda (Cure SMA) – Moderator Sheela Chitnis (MSSI) Bhushan Ghate (ASWS) Prasanna Shirol (ORDI) Gautam Dongre..
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Racefor7: Over 4000 participants virtually unite to raise awareness for rare diseases By BioVoice News Desk – March 1, 2021 In the backdrop of 70 million rare disease patients in India, Organization for Rare Diseases India (ORDI) through the event hopes to..
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4,000 run for rare disease awareness in 200 cities The event was held virtually, uniting over 4,000 participants from 200 cities across the country, to raise their voices for the rare disease community. Published: 01st March 2021 02:14 AM | Last Updated: 01st..
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Click Below link for more photos Race for 7 2021 bangalore..
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Click Below https://www.asbmb.org/asbmb-today/people/022521/raising-awareness-and-funding-for-pompe-disease Like most new parents, Prasanna and Sharada Shirol were over the moon when their daughter Nidhi was born in 1999. Their firstborn and ultimately only child, Nidhi was the center of their attention. But they soon grew..
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Click below link: https://www.nyoooz.com/news/chennai/1554708/race-to-raise-awareness-on-rare-diseases-news-today/ Race to raise awareness on rare diseases News Today | Thursday | 25th February, 2021 Chennai: In the backdrop of Rare Disease Day 2021 Organisation for Rare Diseases India (ORDI) a not for profit organisation..
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Click below link: Race to raise awareness on rare diseases..
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Click below link : http://www.uniindia.com/racefor7-raising-awareness-de-stigmatizing-rare-diseases/east/news/2328082.html ..
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Click below link: Racefor7 – Raising awareness and de-stigmatizing rare diseases in India..
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Click below link: https://timesofindia.indiatimes.com/entertainment/events/bangalore/a-virtual-event-in-namma-bengaluru-to-raise-awareness-and-destigmatise-rare-diseases-in-india/articleshow/81193039.cms A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India In the backdrop of Rare Disease Day 2021, Organisation for Rare Diseases India (ORDI) a not for profit organization representing the collective voice of all..
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Hello All, State government of Karnataka is organising a South Region Virtual Rare Disease Consultation in collaboration with PPHF. The objective of the virtual consultation is to address the key unmet needs in the management of rare diseases at state level, produce..
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https://www.youtube.com/watch?v=KnZiSIhQGlE&feature=youtu.be My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel. https://twitter.com/NewsX/status/1361567000779104260 https://lnkd.in/gKtU-WZ https://www.facebook.com/Newsxonline/posts/10158441850417763 #advocacy #raredisease #rarediseasewarrior #policy #patients #geneticsmatter..
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Prasanna Shirol, Co-founder and Executive director of Organisation for Rare Disease in India (ORDI) recently joined NewsX for a conversation under its special segment, News X India A-List series. Mr Prasanna is one of the key pioneers in the field..
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Article published in “New Karnataka” on 11th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organized on “World Rare Disease Day” on 28th February 2021 at 6.30 am. https://registration.racefor7.com/..
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Raring to go Run for a cause at this 7km race, where you can learn more about 7,000 rare diseases and the importance of diagnosing them early By Express News Service BENGALURU: Prasanna Shirol is a man on a mission. Come Feb...
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Published dtd 10.02.2021..
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