@ APARDO Meeting Manila
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Read MoreFor Best of Prague Photos : https://photos.google.com/share/AF1QipOpfEIHLA29hv3AqAGjBKN00jBekmBoGqi-vzsE9XaSkQ_EwrOajFyGxIGffVNRew?key=S2tqcW84UkVObUs1QWJwTnh4al90bUFOWnF6aXpn..
Read MoreMet Mr Vinay Sharma, Business Unit Head Astra Zenca along with Mr Madhana Gopal. We discussed Scenario of Rare Disease Market and possible strategies to provide access to Patients in India. Astra Zeneca offers big hope among the industry with..
Read MoreWas part of 1st Reunion meeting after my B Sc in SSKB college Basavakalyan. This is after 35 years..
Read MoreI was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates,..
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Read MoreMy daughter Nidhi, India’s First Pompe Patient, Pompe a Rare Genetic condition. She lived on Tracheostomy for 16 years, and was going to School / college with 3 machines. She inspired millions in India for the best living example with..
Read MoreI had the Opportunity to speak to the PG students of PGI Chandigarh on Role of ORDI and update on the Rare Disease Policy. Thanks to Dr Inusha Panigrahi for the Opportunity..
Read MoreRace for 7 Highlights ❖ Over 180 Participants & Two Patients ❖ 2nd Time in Kochi ❖ Event Flagged off by Mr.Vijay, ACP,Govt of Kerala ❖ Over 400 Participants & 25 patients ❖ 2nd time in Ahmedabad ❖ Event..
Read MoreORDI has inaugurated its first ” Rare Clinic” in Bengaluru on 10th Sept 2022. Dr Meenakshi Bhat – Clinical Geneticist, Centre for Human Genetics Inaugurated the Clinic, Cytiva Team Kavitha Subramaniam and Mr Vineet Inagurated OPD -1 room and also..
Read MoreORDI Conducted Medical Camp On Dated Oct 15th 2022 . Many patients came to the camp and made the Camp successful. There are 7000 Rare Diseases & 70Million Patients are there in India. The objective of this camp was to..
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