Category Archives: Gallery

Corporate Awareness event @Labcorp, Bengaluru Office

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On 12th May 2025 ORDI conducted “Rare Diseases Awareness” program at LabCorp Office at Bengaluru. This was attended by employees both physical and online. I spoke about how ORDI supports Rare Disease patients and how individual and company can support..

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Meeting with Merck Team

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My self and Mr Madhan  had an opportunity to Meet Dr Jan Klatt, Senior Vice President – Head of Development of Unit Neurology & Immunology- Germany Mr Ter Yow Wei , A/Director , Clinical Site Lead, SEA, India and HK..

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I was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates,..

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Nidhi’s Life Video

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My daughter Nidhi, India’s First Pompe Patient, Pompe a Rare Genetic condition. She lived on Tracheostomy for 16 years, and was going to School / college with 3 machines. She inspired millions in India for the best living example with..

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Contact Me

Address
#16/2, Sri Krishna Krupa, 19th Cross,
8th Main, kashimutt Road, Malleshwaram,
Bengaluru – 560055, Karnataka, India.

 

Contact
Phone: +91 9980133300
E-mail: prasannashirol@gmail.com

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