Category Archives: Gallery

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I was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates,..

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Nidhi’s Life Video

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My daughter Nidhi, India’s First Pompe Patient, Pompe a Rare Genetic condition. She lived on Tracheostomy for 16 years, and was going to School / college with 3 machines. She inspired millions in India for the best living example with..

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Race for 7 2023

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Race for 7 Highlights ❖ Over 180 Participants & Two Patients ❖ 2nd Time in Kochi ❖ Event Flagged off by Mr.Vijay, ACP,Govt of Kerala   ❖ Over 400 Participants & 25 patients ❖ 2nd time in Ahmedabad ❖ Event..

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Medical Camp in Mundaragi

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ORDI Conducted Medical Camp On Dated Oct 15th 2022  . Many patients came to the camp and made the Camp  successful. There are 7000 Rare Diseases & 70Million Patients are there in India. The objective of this camp was to..

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#16/2, Sri Krishna Krupa, 19th Cross,
8th Main, kashimutt Road, Malleshwaram,
Bengaluru – 560055, Karnataka, India.

 

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Phone: +91 9980133300
E-mail: prasannashirol@gmail.com

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