Dr. Shroff’s Charity Eye Hospital organized a CURED ( Conference for Unknown and Rare Eye Diseases) conference in Association with NIH, CEGC in India .Habitat Center New Delhi on 7th April 2024. I spoke about ORDI and Rare Disease policy...
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Attended 57th OPPI Annual Day in Mumbai..
Read MoreI was part of this special Award function by Boehringer Ingelheim in Amsterdam and There was a personalized menu based on our choice..
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I was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates,..
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I was a moderator at ISHG 23 conference on 23rd Jan 2024 in Ahmedabad. The session was on Rare Disease Policy. There was a represtation from all stakeholders like Patients, Industry, Govt and Medical Fraternity. Thanks to Dr Jayesh Seth..
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My daughter Nidhi, India’s First Pompe Patient, Pompe a Rare Genetic condition. She lived on Tracheostomy for 16 years, and was going to School / college with 3 machines. She inspired millions in India for the best living example with..
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I had the Opportunity to speak to the PG students of PGI Chandigarh on Role of ORDI and update on the Rare Disease Policy. Thanks to Dr Inusha Panigrahi for the Opportunity..
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Race for 7 Highlights ❖ Over 180 Participants & Two Patients ❖ 2nd Time in Kochi ❖ Event Flagged off by Mr.Vijay, ACP,Govt of Kerala ❖ Over 400 Participants & 25 patients ❖ 2nd time in Ahmedabad ❖ Event..
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ORDI has inaugurated its first ” Rare Clinic” in Bengaluru on 10th Sept 2022. Dr Meenakshi Bhat – Clinical Geneticist, Centre for Human Genetics Inaugurated the Clinic, Cytiva Team Kavitha Subramaniam and Mr Vineet Inagurated OPD -1 room and also..
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