Category Archives: Gallery

TIGS Event

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ORDI & TIGS conduct Rare Genetic Diseases Research Summit on Dated 24th & 25th Nov 2022. REDRESS-2022 is an indigenous and recurrent platform to bring together rare disease researchers and stakeholder work for the Indian Rare Genetic Disease Population ...

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CONFERENCE ON THE HEREDITARY ANGIOEDEMA (HAE)

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ORDI & HAE India have organized  a conference on hereditary angioedema at Connaught Royal Hotel in New Delhi on Dated 18th Dec 2022.  The Event is to understand the Burden of HAE and need the hour for taking the HAE..

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Singapore workshop!

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This  Workshop  will l help ‘How to reach patients and careers’. Reaching and engaging patients is a challenge we all face. This workshop will be a great opportunity for patient organizations to come together and share our experiences, successes, challenges, and..

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300 kids await treatment cash

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The children, most of whom are below 15 years, have rare congenital diseases called Gaucher disease, Fabry disease and Fanconi anaemia, among others. Over 300 children in India with rare diseases are currently unable to receive treatment because the Union..

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Interview with Snigdha

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Prasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental in national-level advocacy for Rare Disorders for the past 11..

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Address
#16/2, Sri Krishna Krupa, 19th Cross,
8th Main, kashimutt Road, Malleshwaram,
Bengaluru – 560055, Karnataka, India.

 

Contact
Phone: +91 9980133300
E-mail: prasannashirol@gmail.com

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