OISF Launch
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Category Archives: Gallery
ORDI – Racefor7-2018 coverage by Digvijaya TV during press Meet
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Racefor7-2018 coverage by Digvijaya TV..
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ORDI Race For 7: a run that will change lives
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ORDI- Race For 7: a run that will change lives ..
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ORDI Video by Savr Kumar
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This video compiled by Mr Savr Kumar ..
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Long Wait for Rare Disorder Patients
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Long Wait for Rare Disorder Patients IIJNM Bangalore Published on 5 Sep 2017..
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Interview in ETHealthWorld
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In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of rare disease policy...
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ORDI Race for 7 -2017- Press Meet coverage
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Race for 7 Media Release- My Quote “Rare diseases are not really as rare as we think there are. It is estimated that there are 70 million rare disease patients in India and one out of every twenty Indians suffer..
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CME on Pompe in NIMHANS in Bengaluru
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CME on Pompe in NIMHANS in Bengaluru was conducted. This was attended by Dr Meenakshi Bhat, Dr Asha Benakappa- Director IGICH and Other Doctors from bengaluru..
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Precision medicine can offer HOPE to Rare Disease Patients- Bio Voice News
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Precision medicine can offer HOPE to Rare Disease Patients. The Rare Diseases have not received the attentionthey deservedwithin the health Policy Initiatives in India , feels Prasanna Kumar B Shirol.v- Bio Voice News -Aug 2016 Download PDF for full..
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ORDI Race for 7- 2016 Press Meet coverage by B TV
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ORDI Race for 7- 2016 Press Meet coverage by B TV..
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ORDI Race for 7- 2016 Press Meet coverage by Kasturi News
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ORDI Race for 7- 2016 Press Meet coverage by Kasturi News..
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI’s First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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APRED( Association of People with Rare Eye Diseases) Support group Launch
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Organized and Launched a special support group for persons with RP (Retintis Pigmentosa).Association of People with Rare Eye Diseases.ThiswasLedbyMrSubramani who is working With Deccan Herald and Smt Anadi Vishwanathan. The book “Lights OUT” written by Mr Subramni was also introduced..
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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