As a speaker in International Biobanking Conference 2026
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Category Archives: Photo Gallery
Living on borrowed time: Tremendous cost of rare diseases in India
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Revathi B, an engineering student in Bengaluru, hopes to turn 19 this April — if she lives to see it. Diagnosed with the most severe form of Gaucher disease, a rare genetic disorder that often claims lives in early childhood,..
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Historic Initiative in Rare Disease Screening in Kolkata.
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কলকাতায় বিরল রোগ স্ক্রিনিংয়ে ঐতিহাসিক উদ্যোগ! ১১ হাজার ৩০০ পরিবারে পরীক্ষা, ১১টি রোগ নির্ণয় কলকাতা পুরসভা, ORDI ও RWBA-র উদ্যোগে প্রথম সরকারি বিরল রোগ স্ক্রিনিং কর্মসূচিতে ১১,৩০০ পরিবার পরীক্ষা, ১১টি নিশ্চিত রোগ নির্ণয় এবং সুস্থ শিশুজন্মের নজির। প্রেস ক্লাবে সচেতনতা..
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Met Dr. Sunil Dogra
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Dr. Sunil Dogra at 5th National Conference of HAE Society of India (HAESICON) in Bengaluru on 21st and 22nd Feb 2026 at Sheraton Grand Bengaluru. He is a Professor in the Department of Dermatology, Venereology & Leprology at PGIMER, Chandigarh...
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Met Dr. (Mrs) Prasanna Menon at HDSI Conference in Bengaluru
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I Met Dr. (Mrs) Prasanna Menon at HDSI International conference Conference in Bengaluru on 23rd and 24th Aug 2025. She runs Dr. Menon’s Palliative Care in Thane Mumbai and it was heartening to know about the kind of care and..
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Met Archana Ravada at Huntington Disease Conference in Bengaluru
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I Met Archana Ravada HDSI International conference Conference in Bengaluru on 23rd and 24th Aug 2025. She is a Brave Rare Warrior fighting the battle alone. Her maturity and understanding about the condition and living with HD is an example..
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Corporate Awareness event @Labcorp, Bengaluru Office
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On 12th May 2025 ORDI conducted “Rare Diseases Awareness” program at LabCorp Office at Bengaluru. This was attended by employees both physical and online. I spoke about how ORDI supports Rare Disease patients and how individual and company can support..
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Meeting with Merck Team
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My self and Mr Madhan had an opportunity to Meet Dr Jan Klatt, Senior Vice President – Head of Development of Unit Neurology & Immunology- Germany Mr Ter Yow Wei , A/Director , Clinical Site Lead, SEA, India and HK..
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COLLABORATE initiative at Prague Czech Republic -Photos
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For Best of Prague Photos : https://photos.google.com/share/AF1QipOpfEIHLA29hv3AqAGjBKN00jBekmBoGqi-vzsE9XaSkQ_EwrOajFyGxIGffVNRew?key=S2tqcW84UkVObUs1QWJwTnh4al90bUFOWnF6aXpn..
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Meeting with Mr Vinay Sharma, Business Unit Head Rare Diseases India.
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Met Mr Vinay Sharma, Business Unit Head Astra Zenca along with Mr Madhana Gopal. We discussed Scenario of Rare Disease Market and possible strategies to provide access to Patients in India. Astra Zeneca offers big hope among the industry with..
Read MoreGuruvandana & Students Re-Union Basavakalyan
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Was part of 1st Reunion meeting after my B Sc in SSKB college Basavakalyan. This is after 35 years..
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CONCURED Conference New Delhi 7th April 2024
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Dr. Shroff’s Charity Eye Hospital organized a CURED ( Conference for Unknown and Rare Eye Diseases) conference in Association with NIH, CEGC in India .Habitat Center New Delhi on 7th April 2024. I spoke about ORDI and Rare Disease policy...
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