For Best of Prague Photos : https://photos.google.com/share/AF1QipOpfEIHLA29hv3AqAGjBKN00jBekmBoGqi-vzsE9XaSkQ_EwrOajFyGxIGffVNRew?key=S2tqcW84UkVObUs1QWJwTnh4al90bUFOWnF6aXpn..

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Race for 7 Highlights ❖ Over 180 Participants & Two Patients ❖ 2nd Time in Kochi ❖ Event Flagged off by Mr.Vijay, ACP,Govt of Kerala   ❖ Over 400 Participants & 25 patients ❖ 2nd time in Ahmedabad ❖ Event..

ORDI has inaugurated its first ” Rare Clinic” in Bengaluru on 10th Sept 2022. Dr Meenakshi Bhat – Clinical Geneticist, Centre for Human Genetics Inaugurated the Clinic, Cytiva Team Kavitha Subramaniam and Mr Vineet Inagurated OPD -1 room and also..

ORDI Conducted Medical Camp On Dated Oct 15th 2022  . Many patients came to the camp and made the Camp  successful. There are 7000 Rare Diseases & 70Million Patients are there in India. The objective of this camp was to..

ORDI & TIGS conduct Rare Genetic Diseases Research Summit on Dated 24th & 25th Nov 2022. REDRESS-2022 is an indigenous and recurrent platform to bring together rare disease researchers and stakeholder work for the Indian Rare Genetic Disease Population ...

ORDI & HAE India have organized  a conference on hereditary angioedema at Connaught Royal Hotel in New Delhi on Dated 18th Dec 2022.  The Event is to understand the Burden of HAE and need the hour for taking the HAE..

This  Workshop  will l help ‘How to reach patients and careers’. Reaching and engaging patients is a challenge we all face. This workshop will be a great opportunity for patient organizations to come together and share our experiences, successes, challenges, and..

Appealed to Dr Ashwathnarayan C. N., Honorable Minister for IT BT and ST – Govt of Karnataka, for implementing “Orphan Drug Policy” for the state of Karnataka and “National Policy for Rare Diseases” in the state on 5th Aug 2022..