OISF Launch
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Category Archives: Photo Gallery
CME on Pompe in NIMHANS in Bengaluru
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CME on Pompe in NIMHANS in Bengaluru was conducted. This was attended by Dr Meenakshi Bhat, Dr Asha Benakappa- Director IGICH and Other Doctors from bengaluru..
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Precision medicine can offer HOPE to Rare Disease Patients- Bio Voice News
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Precision medicine can offer HOPE to Rare Disease Patients. The Rare Diseases have not received the attentionthey deservedwithin the health Policy Initiatives in India , feels Prasanna Kumar B Shirol.v- Bio Voice News -Aug 2016 Download PDF for full..
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI’s First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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APRED( Association of People with Rare Eye Diseases) Support group Launch
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Organized and Launched a special support group for persons with RP (Retintis Pigmentosa).Association of People with Rare Eye Diseases.ThiswasLedbyMrSubramani who is working With Deccan Herald and Smt Anadi Vishwanathan. The book “Lights OUT” written by Mr Subramni was also introduced..
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1st all India PAG ( Patients Advocacy Meeting at MS Ramaiah Hospital Bengaluru
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Organized a ORDI First all India PAG ( Patients Advocacy Group) Meeting at MS Ramaiah Hospital Bengaluru. Harsha Rajasimha, Dr Sudha from Center for Human Genetics, Mr Anand from DART, and others were participated . Disease gropu represented were Pompe,..
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Speaker at CME at Jodhpur
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This was a Photo taken in Train during Travel from Jaipur to Jodhpur. We were traveling to attend CME program organised by Mr Vikas Bhatia of MERD India. Mr Piyush parent also travelled along with us. I spoke on Role..
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO)- 1st Board Meeting
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015. Under the leadership of Mrs Durhane Wong-Rieger,President & CEO-Canadian Organization for Rare Disorders. This is the first Board Meeting. Mr Bill Claxton, Dr Ratnadevi from IAPG and others..
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015
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Asia-Pacific Alliance of Rare Disease Organizations ( APARDO) Launch in Singapore 2015. Under the leadership of Mrs Durhane Wong-Rieger,President & CEO-Canadian Organization for Rare Disorders..
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1st Rare Disease Camp in Hatti Gold mine, Raichur, Karnataka
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Conducted first Rare Disease Camp in Hatti Gold Mine- Raichur..
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ORDI Poster Presentation in Rare Disease Asia Conference 2015- Love Is Not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . We Presented a Poster on ORDI -RDCCC for the first time and received lot appreciation for the concept...
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Rare Disease Asia Conference 2015 – Love is not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . I was one of the Organizing Committe Member on behalf of ORDI and Alos Member of the faculty at the inagural. I also Partipated in the panel..
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Rare Disease Asia Conference 2015- Love Is Not Rare
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Partipated in a Rare Disease Asia Conference 2015- Love Is Not Rare . I was on eof the Organizing Committe Member on behalf of ORDI. I also Partipated in the panel Discussion ” Landscape of the Support Networks for Rare..
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Peace Protest demanding treatment for LSD patients in Bengaluru
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Organized a Peace protest demading the treatment from Govt of Karnataka. More than 40 Patients and 100’s of Family members , Care givers and other stake holders participated. Media support was very good. This event was very successful and finally..
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After many years met high school classmate Onkar Ainapur
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After many years met high school classmate Onkar Ainapur. He is now a professor in Goa Govt College..
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