Category Archives: Video Gallery

My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel.

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https://www.youtube.com/watch?v=KnZiSIhQGlE&feature=youtu.be My Interveiw on NewsX A-List on being selected as India’s A-List for excellance in Health Advocacy by News X India Channel. https://twitter.com/NewsX/status/1361567000779104260 https://lnkd.in/gKtU-WZ https://www.facebook.com/Newsxonline/posts/10158441850417763 #advocacy #raredisease #rarediseasewarrior #policy #patients #geneticsmatter..

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The Burden of Rare Diseases

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Over 70 million Indians suffer from rare diseases, the treatment cost of which runs into tens of lakhs every year, lifelong. Yet we don’t have a national policy to support patients such as Dhruti P from Mysuru...

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Interview in ETHealthWorld

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In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of rare disease policy...

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ORDI Race for 7 -2017- Press Meet coverage

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Race for 7 Media Release- My Quote “Rare diseases are not really as rare as we think there are. It is estimated that there are 70 million rare disease patients in India and one out of every twenty Indians suffer..

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8th Main, kashimutt Road, Malleshwaram,
Bengaluru – 560055, Karnataka, India.

 

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E-mail: prasannashirol@gmail.com

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