Media Interaction In Hyderabad request to AP govt
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Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate. ..
Read MoreSpeaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate. ..
Read MoreAbout Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from Pompe...
Read MorePrasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds. ..
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Read MoreThis is a video of Nidhi Shirol- 12 year old girl having a ultra rare genetic disorder called “Pompe”. Nidhi Shirol is also First Pompe PAtient in India. This is produced by LSD Support Society for public awareness...
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