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Racefor7-2018 coverage by Digvijaya TV..

ORDI- Race For 7: a run that will change lives    ..

This video compiled by Mr Savr Kumar  ..

Long Wait for Rare Disorder Patients IIJNM Bangalore Published on 5 Sep 2017..

In an interview with ETHealthworld, Prasanna Shirol, Co- Founder and Executive Director, Organization for Rare Disease India, Bengaluru, talks about the bottlenecks that still exist even after the formation of rare disease policy...

Race for 7 Media Release- My Quote “Rare diseases are not really as rare as we think there are. It is estimated that there are 70 million rare disease patients in India and one out of every twenty Indians suffer..

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ORDI Race for 7- 2016 Press Meet coverage by Kasturi News..

More than 40+ LSD parents in Bangalore assembled in Bangalore urging the Govt of Karnataka to release budget for treatment of Rare Disease on 1st Nov 2014 in Freedom Park. COverage by Kasturi News...

Sit In Protest Invitation by Rare Disease Children -LSD..

India’s first Pompe Patient Nidhi Shirol , Sharada Shirol during Dharana to appeal for Treatment to Govt of Karnataka in Kasturi NewsLSD (Rare Disease) Patients appeal for Treatment to Govt of Karnataka in Kasturi News..

Janashri TV channel Media Coverage of Patients Peace protest in Bengaluru..

Samaya TV coverage during Press Meet -Appeal to Karnatka Govt by Rare Disease patients in Karnataka      ..