ORDI Race for 7- 2016 Press Meet coverage by Kasturi News..

More than 40+ LSD parents in Bangalore assembled in Bangalore urging the Govt of Karnataka to release budget for treatment of Rare Disease on 1st Nov 2014 in Freedom Park. COverage by Kasturi News...

Sit In Protest Invitation by Rare Disease Children -LSD..

India’s first Pompe Patient Nidhi Shirol , Sharada Shirol during Dharana to appeal for Treatment to Govt of Karnataka in Kasturi NewsLSD (Rare Disease) Patients appeal for Treatment to Govt of Karnataka in Kasturi News..

Janashri TV channel Media Coverage of Patients Peace protest in Bengaluru..

Samaya TV coverage during Press Meet -Appeal to Karnatka Govt by Rare Disease patients in Karnataka      ..

Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate.  ..

About Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from Pompe...

Prasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds.  ..