Attended APARDO ( Asia Pacific Association for Rare Diseases  Meeting in Manila – Philippines from 23rd to 24 the Nov 24.          ..

My self and Mr Madhan  had an opportunity to Meet Dr Jan Klatt, Senior Vice President – Head of Development of Unit Neurology & Immunology- Germany Mr Ter Yow Wei , A/Director , Clinical Site Lead, SEA, India and HK..

It was my privilege to be among 60 members from 6 continents to attend and represent India at COLLABORATE initiative at Prague Czech Republic The first-of-its-kind multistakeholder initiative aimed to understand the challenges faced by people with #adult-onset rarediseases and..

Faculty at Gene Therapy & Precision Medicine Conference- Bengaluru on 21st and 22nd September 2024 organized by GROW Research Laboratory -Narayana Nethralaya Bengaluru, Centre for Genetics & Gene Therapy and Narayana Nethralaya Foundation. The Conference was Inaugurated by Honourable Chief Justice of..

I was Speaker at Patient Centric Summit ( GPP Charter ) – Dubai, Organised by Boehringer Ingelheim. Spoke on Framework to Support POs (Patient Organizations) and HCPs ( Health Care Professionals) in GPP ( Generalized Pustular Psoriasis) Management. A Rare..

My statement on the occasion: “The burden of care remains not just for a day. With genetic disease they think about how to manage month on month for years. Some loose hope in the process, there are suicide attempts, divorces,..

We at ORDI inaugurated ARK (Alliance for Rare KIDneys) to Support Patients Suffering from Rare Kidney Diseases on 13th  September 2024, Rare kidney diseases include more than 150 rare disorders, generally characterized by low prevalence and often with multifactorial causation;..

Attended Global Clinical Trial Experts Panel Meeting on Diversity in Clinical Trials at Amsterdam organised by Boehringer Ingelheim from 2nd to 4th September 24...

Ahobilam is a town in Nandyal District of Andhra Pradesh.  It is surrounded by beautiful hills of the Eastern Ghats. It is the centre of worship of  Lord Narasimha , The lion headed avatar of Vishnu to whom the 9 temples are dedicated...

I was a speaker at the webinar organised by Dr Shroff’s Charity Eye Hospital, Delhi.  ..

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My self and Sharada today visited to check on how Madiha a cute girl diagnosed with Pompe in Bijapur  is doing. We  were happy to see her activities and smile on their parents on improving health condition. Thanks to early..

This special clinic benefits all Cystic Fibrosis  Patients. Here special rate are applicable and gets advantage of the specialist Dr Ilin and eliminates the lack of specialist availability in the country even to the lower middle class and rural patients...

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It was my privilege to speak at the 1st International Patient summit on challenges and successes of hashtag#ORDI journey. opportunity to interact with many Patients, patient leaders, Advocates from South Asia, Healthcare Experts, Industry leaders etc Thank you Dr. Ratna Devi and Patient Academy for..