Media Interaction In Hyderabad request to AP govt
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Speaking to Media on occasion of Media Interaction in Andra Pradesh requesting Govt of AP to extend support to LSD Patients in the sate. ..
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Category Archives: Activities
About Pompe in Udaya T V-Sanjeevini
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About Pompe- A programme by Udaya TV – Sanjeevini Program with Prasanna Shirol and Daughter Nidhi who is suffering from Pompe...
Read MoreGSD Meeting and International Pompe Meeting Heidelberg, Germany 2013
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Attended International GSD Meeting and International Pompe Meeting at Heidelberg, Germany 2013 ..
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CME on LSD and PID
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Continued Medical Education (CME) on Lysosomal Storage Disorder (LSD) and Primary Immune Deficiency (PID) on 31st Aug 2013 at Indira Gandhi Institute of Child Health to create a awareness. This was inagurated by Dr Premalatha- Director IGICH, Dr Benakappa –..
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Participated in Mumbai Marathon 2013
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Participated in Mumbai Marthon in 2013 along with Ms Sangeeta Barde- Co-founder and Director, Team of volunteers lead by Mr Kingshuk Ganguly . This was one of the first ORDI outdoor Awareness event. We also had the opportunity to speak..
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Orphan Drug Congress Singapore 2013 Speaker and Panalist
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Orphan Drug Congress Singapore 2013. As a Speaker spoke on Opportunities for Orphan Drug companies in India . In Panal Discussion we discussed on Collaboration of Mutually Favorable Outcome for Patient Groups and Industry Players in Asia Pacific...
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IMER – Samhita 12- Alumni Meet Belgaum
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IMER – Institute of Managment and Education and Research of KLS Lawa Societies Belgaum conducts “Samhita ” Alumni Program every Year. In 2013 I was I was honoured with “Alumni Achiever” on the occasion of 22nd foundation Day. This is one..
Read MoreInternational MPS Day observed in BJ Medical College and Civil Hospital, Ahmedabad.
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Organised a “International MPS Day” on May 15th, 2013 at BJ Medical College and Civil Hospital, Ahmedabad on behalf of LSDSS. This was the first such meeting on Rare Disease in Gvt Hospital at Ahmedbad. Several Staff of the college..
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Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh
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Prasanna Kumar Shirol, President, Lysosomal Storage Disorders Support Society (LSDSS), Rare genetic Disorders Awareness Meet, Hyderabad, Andhra Pradesh. Lysosomal Storage Disorders are ultra rare genetic disorders and are of 45 kinds. ..
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil KBC version in Vijaya TV in Chennai -Press Meet
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
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Karthi Turns hero for a cause
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Actor Karthi Sivakumar donating amount to LSDSS he won in Tamil Version of “Kaun Banega Karodapathi” (KBC) in Vijaya TV in Chennai. To announce this a Press meet was conducted...
Read MoreWritten Letter to Dr S R Chauhan, Medical Commissioner , Employees State Insurance Corporation, New Delhi, India on behalf of LSDSS requesting treatment to Dharmendra and Vishal suffering from MPS( Mucopolysachirodisis) who are a beneficiary of ESI card.
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Written Letter to Dr S R Chauhan, Medical Commissioner , Employees State Insurance Corporation, New Delhi, India on behalf of LSDSS requesting treatment to Dharmendra and Vishal suffering from MPS( Mucopolysachirodisis) who are a beneficiary of ESI card...
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Written Letter to Mr Mallikarjun Kharge , Union Minister for Labor and Employment
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Written Letter to Mr Mallikarjun Kharge , Union Minister for Labor and Employment on behalf of LSDSS requesting treatment to Dharmendra and Vishal suffering from MPS( Mucopolysachirodisis) who are a beneficiary of ESI (Employees State Insurance Corporation) card...
Read MoreWritten Letter to Honourable Chief Minister Mrs Mamata Banarjee, West BEngal to save the child Suffering from Gaucher in Kolkotta.
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Written Letter to Honourable Chief Minister Mrs Mamata Banarjee, West Bengal to save the child Suffering from Gaucher in Kolkotta...
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Visit to Raja House to meet his son diagnosed with Gaucher in Chennai
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My passion to learn how each patients live in their house and to understand the family condition, How each parents with Rare Disease feel, Plan and take care of their loved one. This is a great learning form me to..
Read MoreWrote letter to Shri Narendra Modi -Cheif Minister and Health Minister
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Today sent request letter to Shri Narendra Modi , Honorable Chief Minister of Gujarat Ahmedabad, Gujarat. and Shri Jay Narayan Vyas ,Honorable Minister of Health & Family Welfare Government of Gujarat, Ahmedabad, Gujarat. Requesting for Requesting for creation of a special fund for..
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Written letter to CM, Health Minister, Minister of Medical Education and others
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Today written letters to Andra Pradesh Govt requesting to Request to provide Enzyme Replacement Therapy (ERT) to Baby Harshini (16 months) Mr. N Kiran Kumar Reddy, Hon’ble Chief Minister ,Govt. of Andhra Pradesh,Hyderabad Sri. K. Murali Mohan, Minister for Medical Education,..
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