Faculty at Gene Therapy & Precision Medicine Conference- Bengaluru on 21st and 22nd September 2024 organized by GROW Research Laboratory -Narayana Nethralaya Bengaluru, Centre for Genetics & Gene Therapy and Narayana Nethralaya Foundation. The Conference was Inaugurated by Honourable Chief Justice of..
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I was Speaker at Patient Centric Summit ( GPP Charter ) – Dubai, Organised by Boehringer Ingelheim. Spoke on Framework to Support POs (Patient Organizations) and HCPs ( Health Care Professionals) in GPP ( Generalized Pustular Psoriasis) Management. A Rare..
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My statement on the occasion: “The burden of care remains not just for a day. With genetic disease they think about how to manage month on month for years. Some loose hope in the process, there are suicide attempts, divorces,..
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We at ORDI inaugurated ARK (Alliance for Rare KIDneys) to Support Patients Suffering from Rare Kidney Diseases on 13th September 2024, Rare kidney diseases include more than 150 rare disorders, generally characterized by low prevalence and often with multifactorial causation;..
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Attended Global Clinical Trial Experts Panel Meeting on Diversity in Clinical Trials at Amsterdam organised by Boehringer Ingelheim from 2nd to 4th September 24...
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Ahobilam is a town in Nandyal District of Andhra Pradesh. It is surrounded by beautiful hills of the Eastern Ghats. It is the centre of worship of Lord Narasimha , The lion headed avatar of Vishnu to whom the 9 temples are dedicated...
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I was a speaker at the webinar organised by Dr Shroff’s Charity Eye Hospital, Delhi. ..
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Dr. Shroff’s Charity Eye Hospital organized a CURED ( Conference for Unknown and Rare Eye Diseases) conference in Association with NIH, CEGC in India .Habitat Center New Delhi on 7th April 2024. I spoke about ORDI and Rare Disease policy...
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I was a Invitee and a Speaker at the 2 days National Symposium On Rare Diseases in Udaipur jointly conducted by MOHFW ( ministry of Health and Family Welfare and WHO – India office. This was the first meeting by..
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My self and Sharada today visited to check on how Madiha a cute girl diagnosed with Pompe in Bijapur is doing. We were happy to see her activities and smile on their parents on improving health condition. Thanks to early..
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This special clinic benefits all Cystic Fibrosis Patients. Here special rate are applicable and gets advantage of the specialist Dr Ilin and eliminates the lack of specialist availability in the country even to the lower middle class and rural patients...
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I was a moderator at ISHG 23 conference on 23rd Jan 2024 in Ahmedabad. The session was on Rare Disease Policy. There was a represtation from all stakeholders like Patients, Industry, Govt and Medical Fraternity. Thanks to Dr Jayesh Seth..
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Today, I spent time with the family of Mr. Ameet and Mrs. Vijaylakshmi, whose twins have been in the ICU for three months since birth. Their newborn twins have been diagnosed with CCHS (Congenital Central Hypoventilation Syndrome), a rare genetic..
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