It was my privilege to be among 60 members from 6 continents to attend and represent India at COLLABORATE initiative at Prague Czech Republic The first-of-its-kind multistakeholder initiative aimed to understand the challenges faced by people with #adult-onset rarediseases and..
Read MoreIt was my privilage to be a Speaker at the 6th CII Pharma and Life Sciences in New Delhi..
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Met Mr Vinay Sharma, Business Unit Head Astra Zenca along with Mr Madhana Gopal. We discussed Scenario of Rare Disease Market and possible strategies to provide access to Patients in India. Astra Zeneca offers big hope among the industry with..
Read MorePress Coverage about the Gene Therapy and Precession Medicine Conference and I was one of the Speaker...
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Faculty at Gene Therapy & Precision Medicine Conference- Bengaluru on 21st and 22nd September 2024 organized by GROW Research Laboratory -Narayana Nethralaya Bengaluru, Centre for Genetics & Gene Therapy and Narayana Nethralaya Foundation. The Conference was Inaugurated by Honourable Chief Justice of..
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I was Speaker at Patient Centric Summit ( GPP Charter ) – Dubai, Organised by Boehringer Ingelheim. Spoke on Framework to Support POs (Patient Organizations) and HCPs ( Health Care Professionals) in GPP ( Generalized Pustular Psoriasis) Management. A Rare..
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My statement on the occasion: “The burden of care remains not just for a day. With genetic disease they think about how to manage month on month for years. Some loose hope in the process, there are suicide attempts, divorces,..
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We at ORDI inaugurated ARK (Alliance for Rare KIDneys) to Support Patients Suffering from Rare Kidney Diseases on 13th September 2024, Rare kidney diseases include more than 150 rare disorders, generally characterized by low prevalence and often with multifactorial causation;..
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Attended Global Clinical Trial Experts Panel Meeting on Diversity in Clinical Trials at Amsterdam organised by Boehringer Ingelheim from 2nd to 4th September 24...
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Ahobilam is a town in Nandyal District of Andhra Pradesh. It is surrounded by beautiful hills of the Eastern Ghats. It is the centre of worship of Lord Narasimha , The lion headed avatar of Vishnu to whom the 9 temples are dedicated...
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I was a speaker at the webinar organised by Dr Shroff’s Charity Eye Hospital, Delhi. ..
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Dr. Shroff’s Charity Eye Hospital organized a CURED ( Conference for Unknown and Rare Eye Diseases) conference in Association with NIH, CEGC in India .Habitat Center New Delhi on 7th April 2024. I spoke about ORDI and Rare Disease policy...
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I was a Invitee and a Speaker at the 2 days National Symposium On Rare Diseases in Udaipur jointly conducted by MOHFW ( ministry of Health and Family Welfare and WHO – India office. This was the first meeting by..
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My self and Sharada today visited to check on how Madiha a cute girl diagnosed with Pompe in Bijapur is doing. We were happy to see her activities and smile on their parents on improving health condition. Thanks to early..
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