Click Below https://www.asbmb.org/asbmb-today/people/022521/raising-awareness-and-funding-for-pompe-disease Like most new parents, Prasanna and Sharada Shirol were over the moon when their daughter Nidhi was born in 1999. Their firstborn and ultimately only child, Nidhi was the center of their attention. But they soon grew..

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Click below link: https://www.nyoooz.com/news/chennai/1554708/race-to-raise-awareness-on-rare-diseases-news-today/ Race to raise awareness on rare diseases News Today | Thursday | 25th February, 2021      Chennai: In the backdrop of Rare Disease Day 2021 Organisation for Rare Diseases India (ORDI) a not for profit organisation..

Click below link: Race to raise awareness on rare diseases..

Click below link : http://www.uniindia.com/racefor7-raising-awareness-de-stigmatizing-rare-diseases/east/news/2328082.html  ..

Click below link: Racefor7 – Raising awareness and de-stigmatizing rare diseases in India..

Click below link: https://timesofindia.indiatimes.com/entertainment/events/bangalore/a-virtual-event-in-namma-bengaluru-to-raise-awareness-and-destigmatise-rare-diseases-in-india/articleshow/81193039.cms A virtual event in namma Bengaluru to raise awareness and destigmatise rare diseases in India In the backdrop of Rare Disease Day 2021, Organisation for Rare Diseases India (ORDI) a not for profit organization representing the collective voice of all..

Hello All, State government of Karnataka is organising a South Region Virtual Rare Disease Consultation in collaboration with PPHF. The objective of the virtual consultation is to address the key unmet needs in the management of rare diseases at state level, produce..

Prasanna Shirol, Co-founder and Executive director of Organisation for Rare Disease in India (ORDI) recently joined NewsX for a conversation under its special segment, News X India A-List series. Mr Prasanna is one of the key pioneers in the field..

Article published in “New Karnataka”  on 11th Feb 2021 about ORDI – Race for 7. This 6th edition and is Virtual this year Race for 7 is an annual mass “Awareness Run/Walk/Ride” being organized on “World Rare Disease Day” on  28th February 2021 at 6.30 am. https://registration.racefor7.com/..

Published dtd 10.02.2021..

Invitation for the East Region Virtual Rare Disease Consultation on 12th December 2020 from 10:00 am to 2:00 pm..

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Click  below link for more information 2020-PediatricBioethicsBrochure-v3    ..

On this episode, Pallavi chats with Prasanna Shirol about his daughter, Nidhi’s extremely rare disease, Pompe. Here’s an unbelievable story of the unimaginable. Click  the link below for the audio mailer https://youtu.be/vqwZUVCNF_8 http://shows.wyn.studio/rF_jI_MI..