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I was a part of First Ever summit dedicated to advancing equitable care for rare diseases in older adults. The meeting was attended from 25 countries across Canada, Latin America, Europe, and Asia, representing patient and caregiver communities, patient advocates,..

My daughter Nidhi, India’s First Pompe Patient, Pompe a Rare Genetic condition. She lived on Tracheostomy for 16 years, and was going to School / college with 3 machines. She inspired millions in India for the best living example with..

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Prasanna Shirol currently serves as the Co-founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India. He has been instrumental in national-level advocacy for Rare Disorders for the past 11..

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  Link for original video : https://youtu.be/d5n5RQwYH8s..

  Link for original Video : https://youtu.be/NegGxkxFZB8..

  Link for original Video : https://youtu.be/rCTjJ7o4o2w..

Link for original video : https://youtu.be/vPRsxJ9X-v0..

  Link for Original Video : https://youtu.be/-qgtv7o-cdg..

  Link for original video : https://youtu.be/mgDxW7udB5U..

  Link for original video : https://youtu.be/NbWBTqJ5B5A..

  Link for original video : https://youtu.be/81MNTzLYWgg..

  Link for original video : https://youtu.be/Qk6nLRMNBZM..

  Link for original Video : https://youtu.be/FEZ3mLcE5m4..